Research Study
Involving Interviews with Pheochromocytoma or Paraganglioma Patients
Announcement:
November 2009
Oxford
Outcomes Inc
Have you been
diagnosed with pheochromocytoma or paraganglioma?
Victoria Divino of Oxford
Outcomes reports that they have had quite a bit of success recruiting
through the support group, but their eligibility criteria is limiting,
and they are still hoping to recruit a few more participants for the
study. This ad explains the study in more detail, so they are hoping to
gain more interest.
Here is the new update:
"Oxford Outcomes is
conducting a qualitative research study involving interviews with
pheo/para patients in order to evaluate the clarity, relevance, and
comprehensiveness of two questionnaires (one cancer specific and one
pheo/para specific), and to evaluate how effective these questionnaires
are at assessing the quality of life and symptoms of patients with
pheochromocytoma or paraganglioma. Interviews will be used to evaluate
their appropriateness for use during clinical trials when they will be
used to determine treatment benefit from the perspective of the
patient."
"We are seeking U.S.
patients, 18 years of age or older, with a documented (medical record)
diagnosis of either pheochromocytoma or paraganglioma with active
symptoms or who are within 60 days of curative therapy."
"Participating would involve a brief interview, lasting approximately 1
hour. Our office is located in the Washington DC metro area. If
in-person interviews are not feasible, interviews can take place over
the phone. Participants will be compensated for their time. Please
contact Victoria at 240-482-0034 if you are interested in participating
or would like to learn more. Oxford Outcomes is conducting this study on
behalf of Molecular Insight Pharmaceuticals. Our study has been
registered under clinicaltrials.gov and can be found here:
