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  Pheochromocytoma Support Group: News


  In the News 2013 and beyond:

ISP 2014 in Kyoto

International Symposium on Pheochromocyto and Paraganglioma

Link to Website: 


Free Seminar: Living with Multiple Endocrine Neoplasia 2013

This seminar is free to all who wish to attend. Since Multiple Endocrine Neoplasia often includes pheochromocytoma and paraganglioma as health issues, many persons within our group may benefit directly or indirectly. This announcement is from Vanderbilt University Medical Center. Here is some basic information:

  • Where: First Tennessee Conference Center
    Monroe Carell Jr. Children’s Hospital at Vanderbilt, Room 2210

  • Address: 2200 Children’s Way, Nashville, TN 37232
  • When: Saturday, Sept. 14th 8:00am-3:00pm
  • Link

 Second Annual International Patient Symposium on Pheochromocytoma and Paraganglioma
This event was held 06/20/2013 – 06/21/2013

Pheochromocytoma and paraganglioma patients, loved ones, and healthcare professionals were invited to attend this symposium scheduled for June 20-21, 2013, NIH campus, The Cloisters in Bethesda, Maryland. There was no charge for attendance for patients but registration was required.

Among the topics to be covered were:

  • Anatomical and Functional Imaging
  • Genetics, Pregnancy and Pheochromocytoma
  • Surgery of Pheochromocytomas and Paragangliomas
  • Radiofrequency Ablation
  • Chemotherapy and Other Approaches to Treatment of Metastatic Pheo/Para
  • Radionuclide Therapy of Metastatic Pheo/Para
  • Pain Management
  • Nutrition
  • Nurturing the Family's Resilience in Times of Crisis, and Patient Navigators
  • The opening welcome was given by Alan E. Guttmacher, Director of NICHD.
  •  Internationally recognized pheochromocytoma and paraganglioma specialist, Dr. Karel Pacak, talked about "Pheo Para Research – Recent Achievements and Future Visions."
  •  The Symposium will also include presentations by Margarita Raygada PhD, Dr. Jacques Lenders, Dr. Marybeth Hughes, Dr. Philip Corcoran, Dr. Aradhana Venkatesan, Dr. Tito Fojo, Dr. Jorge Carrasquillo, Laura Pole MSN, Dr. Jeff D. White, Cynthia R. Ronzio PhD, Julie Hoehl, and from the NICHD National Center for Neuroendocrine Tumors, Kathryn King, Victoria Martucci, Jaydira Del Rivero, and Isabel Garcia.
  • The program features experts in many fields. Some of these experts include: Dr. Merino, MD, Pathology; Dr. Sandler MD, Children's hospital surgeon; multiple cardiologists; Dr Hughes, MD, Surgeon; Dr Fojo, MD, Oncology; Dr Carrasquillo, MD, Sloan Kettering Nuclear Medicine; Dr Pacak, MD, endocrinology; Dr White, MD, NCI ALternative Medicine; Laura Pole, Nutrition and pain control; Cynthia Ronzio, PhD, care of the family, and so much more.